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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Nov 8 5:59pm | Replies (840)
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@fighter123

SOLITARY FIBROUS TUMOR, WHO GRADE 3.
In the frontal lobe. They removed the tumor. I will be going for radiation soon. My left side is numb. Going through physical therapy to move around. I have no idea what to expect. Am I scared? A little. I am at peace and have excepted whatever happens. But I will fight this. Very rare indeed

Linda

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Replies to "SOLITARY FIBROUS TUMOR, WHO GRADE 3. In the frontal lobe. They removed the tumor. I will..."
Colleen Young, Connect Director | @colleenyoung | Jun 13, 2023

Welcome @fighter123. While solitary fibrous tumors are rare, @suemarie3 also joined very recently and has a similar diagnosis, but in the brain not the lung. I encourage you to start a new discussion in the Cancer Support Group about solitary fibrous tumors. Here's how:
1. Go to the Cancer support group https://connect.mayoclinic.org/group/cancer/
2. Click Start a new discussion
3. Enter a question or topic and add your message and mention @suemarie3 to join you.

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suemarie3 | @suemarie3 | Jun 17, 2023

I too had a solitary fibrous tumor of the brain.WHO grade 3
6 weeks of daily radiation.
Finished rad. On Ma 15.
PET scan yesterday…. No metastasized to any other places!
MRI scheduled for June 28 to see if tumor is gone/shrunk.
Trying to eat healthy, walk and do yoga. And pray.
Tumor is rare and not much info about it.
Would love to connect with someone who has had this type of tumor.
So uncertain about my future.

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