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Intermittent right side facial swelling

Autoimmune Diseases | Last Active: Nov 17, 2023 | Replies (28)

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@lisafabs32

Hi @becsbuddy thanks for checking in. My ENT Increased the Dapsone to 100 mg a week a month ago abd I’ve been pretty good for about 3 weeks but Sunday a very bad flair up so I’m back on prednisone for six days. He said he thinks it’s a lymphatic channel blockage - and there’s really no cure. I’m going to start massaging that side of my face I read that doing that can prevent the swelling.
Thank you again for checking - How are you doing?

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Replies to "Hi @becsbuddy thanks for checking in. My ENT Increased the Dapsone to 100 mg a week..."

Hello,
To be brief, I have Long Covid since February 2022. Way back in October I awoke up one day and both sides of my lower face were swollen. About a week later I awoke to lumps about two inches away on either side of my neck. I have had a CT scan and an MRI., and seen more doctors than I can count. The results of the CT scan and MRI is that the Buccal pads in my cheeks have herniated the fat within them is the cause of my swelling. The lumps around my neck are fatty pads. No one knows why this happened, and the conclusion is that I have liposuction on my face and neck.
I have had a career as a Lymphedema Therapist with a PT group. I trained with the Dr. Vodder school. He created this method of massage, which alters the route of the lymphatic fluid if there is a blockage. It is not a cure, but an effective method of reducing the swelling. Unless you know the specifics of the massage, you could make the situation worse. If you see a therapist for this massage, please ask to see their training credentials.
Before I knew the issue was fat, I did the lymphatic massage with no result. It's not going to move the fat. I have seen one plastic surgeon and have an appointment to see another in August, and if the issue has not miraculously resolved itself, I will have the liposuction.
Good luck on this journey.

@lisafabs32 thanks for asking how I’m doing! Every day seems to be something new to deal with! But I really try to just keep going! Had an MRI yesterday that showed no new brain lesions, so that’s good. Now, if I just didn’t have to do housework!!

@lisafabs32 how is the facial massage working?