← Return to My body hurts and I don't know what to do

Discussion

My body hurts and I don't know what to do

Bones, Joints & Muscles | Last Active: Jun 22, 2023 | Replies (10)

Comment receiving replies
@ilikegreen

Hi, so sorry you are suffering pain in your joints. Overly flexible joints like ours can result in joint dislocations and early-onset arthritis, which may explain your pain. Do warm showers help? Have you tried over-the-counter pain relievers — such as acetaminophen (Tylenol, others) ibuprofen (Advil, Motrin IB, others) and naproxen sodium (Aleve)? (Be careful with dosage and duration — these pain relievers are for temporary relief and not long-term use.) Eating a good diet with lots of water, some protein, vegetables, fruits, whole grains, whole foods and minimal to no processed food will also help nourish your connective tissue.

Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body. Joints with weak connective tissue are more likely to dislocate. I know because I am also double-jointed and had a lot of joint issues in my late teenage years. My knees would give out and I would fall to the floor! A doctor said my knees were like those of a football player and likely I would need surgery.

Instead I learned to exercise every day with non-weight bearing exercises that are gentle on my joints like walking, bike ridding, elliptical machines and swimming. No more jogging or running. My knees, elbows and other joints still crack sometimes, but I so far decades later I haven’t needed surgery on them. If I don’t exercise for a few days though, my knees let me know. Consider also avoiding contact sports, extreme weightlifting and other activities that could increase your risk of injury, and minimize stress on your hips, knees and ankles.

I wish I had done more to protect my jaw joints, like avoiding chewing gum. I also take breaks during dental work to close my mouth. Other things I’ve learned: Don't sit for long on hard chairs. Don't sleep on firm mattresses. Sleep on my side. Use body pillows and super-dense foam mattresses to support and cushion my joints. Wear supportive shoes with good arch support and laced boots to help prevent ankle sprains.

This article, “Strengthen connective tissue: what helps?” at https://www.css.ch/en/private-customers/my-health/physical-health/bones-muscles/strengthen-connective-tissue.html , appears to be from an insurance company but does a good job of summarizing some of what I’ve posted here. Hope this helps and you feel better soon.

Jump to this post


Replies to "Hi, so sorry you are suffering pain in your joints. Overly flexible joints like ours can..."

So very sorry. I have had awful Fibromyalgia 22 Yrs so I can identify except for the hypermobility. Have you been tested for Eblo-Danlos Disease and for Rbeumatoid Arthritis? Sometimes Fibro and Ehrlo-Danlos occur together. Also do u have access to getting a permit card so u can purchase medical marijuana for pain?

thank you so much for the help!! i take advil sometimes because i already experience collapsing and struggle walking for long periods of time,
my jaw is always in a lot of pain so i understand that, I have ADHD and am likely on the autism spectrum and one of the main ways i fidget is by chewing which constantly strains my jaw joints 🙁

thank you so much for the help, ill try exercises, but it might be hard for me because i am also asthmatic

I am a teen for context, newly 15, so getting help is very hard for me since my mom doesn't believe me in the slightest. My boyfriend is also hypermobile and receives physical therapy, but my mom flat out told me even if I needed it she would not bring me because I have "too many appointments already" due to needing a dissociative specializing therapist and a psychiatrist