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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Neuroendocrine Tumors (NETs) | Last Active: Apr 15 10:57am | Replies (80)
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@hopeful33250

Hello @lindaamos and welcome to the NETs support group on Mayo Connect. I'm wondering how long ago you were diagnosed with NETs. Were you having symptoms that led to this diagnosis?

I look forward to getting to know you. Please share more about your NETs journey as you are comfortable doing so.

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Replies to "Hello @lindaamos and welcome to the NETs support group on Mayo Connect. I'm wondering how long..."
lindaamos | @lindaamos | Jun 13, 2023

I had abdominal pain for a year . Had CT’S , ultrasounds done , all negative. On one ct a renal aneurysm was found prompting a high density ct and bingo … there they were . Liver biopsy done and NET carcinoma found . My chromium was 978, with 4 shots was reduced to 308. I had a CT and bloodwork today and will see my oncologist again tomorrow.

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