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Anyone have a neuroendocrine tumor (NET) in the spine?

Neuroendocrine Tumors (NETs) | Last Active: Oct 23, 2023 | Replies (56)
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@rrlbees

Yes, I was incidentally found. I have an abdominal and pelvic scan every 3-4 months and every other scan they include the chest. Everything was stable as it has been, but the two possible lesions were seen on the spine. Now we are debating biopsy or dotatate scan to confirm or deny.

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Replies to "Yes, I was incidentally found. I have an abdominal and pelvic scan every 3-4 months and..."
Teresa, Volunteer Mentor | @hopeful33250 | Jun 13, 2023

@rrlbees

I appreciate you sharing a bit more about the incidental finding of the spine problem. So many of us with NETs (me included), had our NETs found incidentally, so this is not unusual.

As you don't talk about spinal pain or other spine-related problems, I'm assuming that there are no symptoms. Is that correct? Will you post again with any other concerns or questions? Also, I'd be interested in hearing about your medical team's decision on whether or not to proceed with a biopsy or Dotatate scan. I look forward to hearing from you again.

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