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Anyone have a neuroendocrine tumor (NET) in the spine?
Neuroendocrine Tumors (NETs) | Last Active: Oct 23, 2023 | Replies (56)Comment receiving replies
Hello @rrlbees and welcome to the NETs support group on Mayo Clinic Connect. As you can see, I've moved your post to an existing NETs discussion on spine NETs. Here you will meet others like @andy2020 @davidclark @firepowr. I would like to invite them to join you in discussing their NETs journey.
You mention, @rrlbees, that these spine lesions were found by scans. I'm wondering if you were having symptoms as well, or if this was an incidental finding during the scan?
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Yes, I was incidentally found. I have an abdominal and pelvic scan every 3-4 months and every other scan they include the chest. Everything was stable as it has been, but the two possible lesions were seen on the spine. Now we are debating biopsy or dotatate scan to confirm or deny.