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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)
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@hopeful33250

Hello @tomatlanta and welcome to Mayo Connect's NET support group. I appreciate your response to @pmberman.

Your diligence in finding the best treatment for your wife's NET diagnosis is wonderful! It often involves seeking out a consultation with a NET specialist, like you did, in order to get the best treatment plan possible. Once the consultation is accomplished, then the treatment plan can often be followed up locally with an in-network doctor.

How is your wife feeling now? What type of follow-up is being planned?

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Replies to "Hello @tomatlanta and welcome to Mayo Connect's NET support group. I appreciate your response to @pmberman...."
tomatlanta | @tomatlanta | Jun 13, 2023

Thanks for asking. My wife is in the middle of her first 14 day round of Captem. So far pretty good; minor GI discomfort and good energy levels at start of day but fatigue as the day goes on. The plan is for 6-9 months of 14 days on and 14 days off with CT scans at 3 month intervals. With a very large tumor the goal is shrinkage. We are hopeful that the therapy will work but if not there will be alternate avenues.

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