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@memcat

I've been living with Long CoVid for 13 months. I'm 62, was in good health for my age, and had all my vaccinations. The hardest thing for me is how hard it was to get seen by a doctor who had an inkling about Long CoVid. After I saw my PCP had no clue or plan, I asked him to refer me to the Long CoVid Clinic near me. It took 9 months after his referral. In the meantime, my employer wants a doctor to verify my limitations and illness. Applying for short-term and long-term disability requires medical documentation and test results that match what the doctor is diagnosing. Most of the tests on Long CoVid patients show nothing and they all cost money. My fear is losing my job and health insurance at a time I need health insurance the most. My symptoms have stagnated. I don't get better, I don't get worse. Some hours are better. But Pacing is the key. Right now I can't go more than 10-20 minutes of any activity without having pain, fatigue, shortness of breath, and lightheadedness. I'm considering getting hiking walking sticks for extra support as my Physical Therapist has me walking 3 times a week for 10 minutes , taking breaks every 1-1 and 1/2 minutes. Duloxetine did nothing for me. Took it for 2 months with no improvement anywhere. AS debilitating as the illness is, it is the anxiety I have of how will I afford healthcare and my bills that is most concerning.

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Replies to "I've been living with Long CoVid for 13 months. I'm 62, was in good health for..."

My heart goes out to you and the others who still need to work to support themselves. I am fortunate enough to be retired and on Medicare and supplemental medical insurance. I’ve had a couple of ER visits and a pacemaker implant but still suffering from shortness of breath. I’m sorry I have no real solutions to offer except my emotional support. Are you in the Long Covid Clinic now? Can those docs provide the necessary documentation for disability insurance? I’m going to try acupuncture and pay out of pocket for that. I wish you the best.