Hello!
I've been AWOL from Mayo for a couple of days. Because I'm the fellow who started this thread about talking to a podiatrist about your PN and your feet, and because tomorrow is the day I'll be meeting with my podiatrist for that very reason, I thought I'd tell you about the couple of questions I plan to ask, wondering if you've any others you'd like to pass along:
1. Can podiatry help someone (I'm 78) with a sensory-leaning idiopathic PN? (I have no pain, only a worrying balance and a way of walking (fishtailing) that only seems to be getting worse. I was diagnosed last August after an EMG and battery of spinal MRIs.)
2. What do you think of my shoes? (Nunbush) I've tried so many different kinds. I have severely flat feet (Size 13) that have seen too many miles of distance running. None that I've tried has made much of a difference. From your experience, have you a brand you'd recommend I try?
3. And then there are my orthotics. I've been wearing orthotics since the late-1980s (not the same pair!). Are there orthotics specially designed for people with PN?
4. My walk has deteriorated. I can no longer walk comfortably, even a half city block. And I know I'm duck-walking (is that what they call it when your toes point outward?) and looking down too much, all the unfortunate by-product of my PN. Should I try some PT specifically to relearn proper walking? If yes, do you know of a therapist specially trained to help persons with PN?
5. Around the home, I go barefoot (or sock-foot). Outdoors, of course, I wear my Nunbush. When I'm barefoot, my feet feel great (and my balance is pretty good, too), but after a while, my lower back begins to ache, and sometimes my knees, too. (Because of no orthotics?) And if I try wearing my shoes indoors, my backache will go away (knees will feel better, too – because my orthotics are in?), but my feet tend to feel all "crampy" (not always, and I believe I'm wearing the right size shoes). My balance (which wasn't too bad when I was barefoot) becomes more challenging. It seems one of those damned if you do, damned if you don't situations. LOL Can you give me some advice on what I should do?
I'll probably have other questions, but these are a few of my biggies. Can you suggest others?
Ray (@ray666)
Hi Ray. I was told to abandon all my orthotics because none helped and to just wear comfortable shoes. My go to shoes have always been Crocs because no arch and wide toe box. For many years they really helped. Now I insert a cheap foam insert or wear the fur lined because the sole is then softer. Over 15 years... now looking for something else.Am taking cymbalta but not sure it helps. Can't take anything but Tylen - 1300 2x day- not good for liver but it does help.. I've tried physical therapy- my balance getting worse and sometimes walk like I"m drunk - not straight. 76 years ole and won't give up. Does anyone have suggestions? Gummies? Shoes? Help.