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Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

Breast Cancer | Last Active: Sep 17 1:42pm | Replies (82)
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@semurrey

Hi @lhhwoz - my ILC very similar - at 57 yrs old and finished radiation end of January and now on Letrozole. I feel there is no std protocol for follow up scans. My oncologist at Dana Farber feels any scans (even while I have very dense breasts) are not helpful in a year! So I have a diagnostic mammo scheduled not until a year (Oct - regular mammo month). May I ask what your timeline looks like in terms of follow up? Thanks so much!! xo

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Replies to "Hi @lhhwoz - my ILC very similar - at 57 yrs old and finished radiation end..."
lhwoz | @lhwoz | Jun 12, 2023

Well initially I was told this August would be my first follow up and I believe the surgeon mentioned scans. See surgeon, rad onc and med onc in August. That will be toughly 6 months post 1st surgery. I will do labwork in August before I see med oncologist in August. But when I went in 6 weeks ago concerned about a seroma they seemed to indicate possibly no scans for a bit longer. I am going to call and clarify. Given my ILC went from -clean mammo' to 2 cm in 9 months I definatelt am hoping for scans sooner than a year. Dana Farber is supposed to be top notch so interesting to hear your path. That is where that well known lobular focussed doc Otto is correct?

How is Letrozole?

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