← Return to Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

Discussion

Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

Breast Cancer | Last Active: Jun 21 8:06pm | Replies (79)
Comment receiving replies
@semurrey

Hi @lhhwoz - my ILC very similar - at 57 yrs old and finished radiation end of January and now on Letrozole. I feel there is no std protocol for follow up scans. My oncologist at Dana Farber feels any scans (even while I have very dense breasts) are not helpful in a year! So I have a diagnostic mammo scheduled not until a year (Oct - regular mammo month). May I ask what your timeline looks like in terms of follow up? Thanks so much!! xo

Jump to this post

Replies to "Hi @lhhwoz - my ILC very similar - at 57 yrs old and finished radiation end..."
lhwoz | @lhwoz | Jun 12, 2023

Well initially I was told this August would be my first follow up and I believe the surgeon mentioned scans. See surgeon, rad onc and med onc in August. That will be toughly 6 months post 1st surgery. I will do labwork in August before I see med oncologist in August. But when I went in 6 weeks ago concerned about a seroma they seemed to indicate possibly no scans for a bit longer. I am going to call and clarify. Given my ILC went from -clean mammo' to 2 cm in 9 months I definatelt am hoping for scans sooner than a year. Dana Farber is supposed to be top notch so interesting to hear your path. That is where that well known lobular focussed doc Otto is correct?

How is Letrozole?

VIEW AND REPLY