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@dbeshears1 Deb - you sure have some unusual circumstances going on and I understand and agree with you about the MRI in light of your episode in 2019. The world of medicine can be confusing and I'm being kind with my wording right now ... however, I've found over the years that tests are ordered in most cases to rule things out and then finally drill down on what the problem could be ruling out the worst-case scenarios. THIS IS what is so different about PN. About 20 million people in US have PN and many of us just don't know why and will never know why. So, we must figure out how to live with it and do our best. The medical community simply don't see this as a major health issue. After all, it's only about 6.5% of the population. If they only knew!! Keep moving -- Ed
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Ed - I get it, I really do. I know you, like me, have invested a a lot of time & $$$ of our own, and have been physically inconvenienced with travel and overnight stays in our quests for answers, and there’s nothing worse than looking at our checkbooks (and ourselves in the mirror) afterward and realizing we got absolutely nothing for what we had hoped would be an investment. Our sacrificing spouses get a little (lot) frustrated too. So there’s a time to put an end to the madness for sure. Meanwhile, our community PT has added another Tone & Balance course to our weekly schedule so I’m in Heaven! (But can’t go until after my trip north to see an Orioles game this week and hopefully run into some steamed crabs 😊)