← Return to Excruciating chronic left side neck pain plus lumbar issues

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@ab6540183

@jenniferhunter @jm1 @jenatsky

Hi sandpiper49,

How are you?

Thank you for your input and advice.

For me it is very difficult to go overseas due to the lack of money.
The current transport accident insurance in Australia won't pay for surgery if done overseas.

I am preparing a Gofundme fund raiser at the moment. I am gathering a lot of information, media and trying to market my campaign properly to get the required funds for surgery.

Here in Melbourne Australia my new doctors aren't interested in a surgical option for me.

My pain management doctor has put me on Nortriptyline and Neurontin to manage the pain.
As of last week starting on the 5th of June, the left side of my neck has been hurting me a lot more when lying down. Last Thursday I woke up with a massive neck spasm that locked my neck in one position. I couldn't turn my head to the left and every time I lied down I had to hold my head with my right hand to prevent the pain from getting worse.
I used a heat pack a few times that helped unlock the muscles.

Now it has been 3 days that I have extreme pain and burning inside both sides of the neck.
Also feel the same burning pain, tightness in my lower back, legs, feet and toes.

My feet are burning and feeling strong pins and needle, stabbing under my feet, in my feet and in my toes. I am not diabetic because I checked this out with some tests several weeks ago.

The burning gets worse when lying down and sitting. Lying down is the worst position but I need to lie down to sleep at night.

Also I feel mini stabbings on the skin of my legs, groin, face, skull.

The back of my skull and the top rear of my neck are burning a lot.

I don't know what is going on and feel concerned about it.

Is this nerve damage? I don't know. My neck nerves have been compressed for the last 10 months because my treating doctors, previous and current, aren't interested in a surgical option.
In the meantime I am getting worse.

I try to walk a lit bit daily to keep my muscles in shape.

The whole experience, since this started in August 2022, has been very frustrating.

Best Regards

Alfred

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Replies to "@jenniferhunter @jm1 @jenatsky Hi sandpiper49, How are you? Thank you for your input and advice. For..."

For the last several months I have been telling my previous and current doctors that I was getting worse and based on a lot advice in the Mayo Clinic Connect, I should have been getting some sort of surgery rather earlier than later.

I asked my doctors that I wanted new MRIs done to check my condition, because my symptoms were increasing by the month. Nothing was being done such as non surgical therapies which were never provided and medication was the only treatment. Despite self care I feel a lot of pain now and I think I understand why.

This is my latest cervical, thoracic spine report which doesn't look good.

Name of Test: MRI Thoracic Spine
Cervical Spine - trauma (1 or 2 contig
Requested: 27/05/2023 Collected:14:30

- trauma (1 or 2 contig regions), MRI regions)
27/05/2023 Reported: 01/06/2023

MRI - WHOLE SPINE
Clinical Indication:
Chronic pain.
Technique :

T1 and T2 fat saturated sequences of the cervical and thoracic spines.
Findings : There are seven cervical type vertebral bodies present.
Mild straightening.

There is no suspicious marrow lesion seen. There is no evidence of marrow
oedema .
There is no abnormality in the posterior fossa.
The cord signal and volume are normal with no intradural lesion.

C1/2:
No impingement.
C2/3:
No impingement.
C3/4:
Uncovertebral discophytic ridging and facet hypertrophy are seen. There is
foraminal narrowing on both sides with impingement of both C4 nerve roots.

C4/5:
Uncovertebral discophytic ridging and facet hypertrophy are seen with
foraminal narrowing on both sides impinging both C5 nerve roots and further
cord contact.

C5/6: Uncovertebral discophytic ridging and facet hypertrophy are seen with
bilateral foraminal narrowing impinging both C6 nerve roots.

C6/7: Uncovertebral discophytic ridging and facet hypertrophy are seen with
bilateral foraminal narrowing impinging both C7 nerve roots.

C7/T1: Annular bulging and endplate osteophytes with facet hypertrophy. Foraminal
narrowing worse on the right impinging the right C8 nerve root.
There is no significant soft tissue abnormality in the neck.

In the thoracic spine, there is multilevel disc desiccation and height loss.
There is no large disc herniation identified.
Endplate osteophyte changes are seen with further facet osteophyte and
degenerative changes.
There is foraminal narrowing seen which is most conspicuous at T2/3 on the
left predominantly due to facet hypertrophy with likely mild impingement of
the exiting left T2 nerve root.
There is no other convincing evidence of thoracic nerve impingement.
There is multilevel minor facet effusion and synovitis seen 'which is
relatively uniform but probably most severe at T7/8 on the left, T8/9, T9/10
and T10/11 bilaterally.
There is a simple lipoma in the lower right paravertebral region around the
Tll/12 level. This is of no concern.
There is a more heterogeneous mass seen left paravertebral around the T2
level. This does not extend into the foramen. It appears to be well
circumscribed. It measures up to 24 x 20mm.
Internally, it is T2 hyperintense with STIR hyperintensity and T1
hypointensity.
Its nature is uncertain. It could be a nerve sheath tumour.
Lymphoma or something malignant would be unlikely though not completely
excluded.

Conclusion: Degenerative changes are seen with cervical nerve root impingement.
Thoracic facet synovitis as described.
Simple lipoma right lower paravertebral region.
In the left paravertebral region in the upper thoracic spine, there is a
more solid-looking mass seen. This could potentially be a nerve sheath
tumour. The lesion is visible on the prior scan and appears to be roughly
stable since that time.