← Return to What were your side effects of proton therapy both during and after?

Discussion
Comment receiving replies
@jc76

I really had a tough time with radiologist/oncologist wanted and recommended Photon and the attitude toward me when I chose Proton. My Proton treatment is 6 weeks M-F pencil. I was 3+4=7 (worst). However my Decipher came back low risk.

Hormone was discussed but have heart failure so ruled out. Glad it was as when Decipher came back it was deemed did not need hormone treatments just curative radiation.

I am going on my 4th week. I really do feel the sensation of the Space/Oar and it is discomfort. But much easier time going through radiation and not having to do ballon. I read at Phoenix Mayo one patient had the Space/Oar and ballon.

I really had some issues with gas, and controlling bowels. But I found out it was my diet not the treatments. Watch the gassy foods as they say as it will really affect your daily treatment. I was getting tired at end of 2nd week but has actually improved.

I would say the worst of having prostrate cancer is going through the first and second opinions and the attitudes you can run into with urologist and radiologist/oncologist. When I read a couple of books on this and they mentioned the attitudes I really did not belief it until I had to deal with it too. I wish I lived closer to Phoenix or Rochester to get the Mayo Proton treatments. Those locations sound great and good selections of treatments.

I am hoping my symptoms remain as is as it will not be bad. I have 3 weeks left. Again my biggest symptom is the discomfort from Space/Oar. My issues with gas and bowel issues was self inflicted and rectified by following recommendations on diet.

Jump to this post


Replies to "I really had a tough time with radiologist/oncologist wanted and recommended Photon and the attitude toward..."

Thanks for the reply.
I feel it is alarming when the radiologist/oncologist changes their demeanor when the patient doesn't just say yes to their "guidance". I feel it is a kind of bullying considering the fragile mental state of the patient.
I am not having the SpaceOAR but have teetered on going for it. Doc has talked me out of it and the data isn't conclusive by any estimates. Still, I feel it is a risk and am concerned.

Again, thanks so much for the detailed reply.