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Numbness, twitching, weakness but clean EMG and MRI

Brain & Nervous System | Last Active: Jun 11, 2023 | Replies (4)
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@windyshores

I have had some similar experiences. I tend to ask for a Western Blot Lyme test, not the Elisa, and there are disagreements about interpreting them. Some docs feel even one "band" (you'll see what I mean) that is specific to Lyme is a positive, whereas others (and the CDC) want a certain number of bands. You can check out lymenet.org for more info.

In my experience, autoimmune tests like the ANA uncovered some problems and recently the full panel, for me, showed scleroderma as well as lupus. However my rheumatologist always said my symptoms sounded more like MS.

The shock when moving your neck has a name (sorry I forget it) and is often indicative of MS. If I were you I would find a neurologist who specializes in MS (once Lyme and ANA are done). Of course I haven't done that myself and it's been years! But I am not bad enough to take the meds.

I have been told you can have normal MRI's and other tests with MS. In between abnormal ones. I hope you get an answer. But for a lot of us with these kinds of symptoms, it takes awhile because it crosses disciplines.

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tx2023 | @tx2023 | Jun 11, 2023

I had the ANA and ANCA test too and it was normal- the ANA was normal twice. I’ve been tested for Sjorgens too. My neurologist specializes in MS and said I don’t have it. She thought I could at the beginning but now she says that isn’t what is wrong. She did another MRI eight months later and everything was normal again. Also, she did my spine where I read a lot of people that end up finding something find something on the second MRI or on the spine since it wasn’t done at first but I’ve had my spine done twice.

I thought the neck shock was down the spine with MS? Mine was never liked that when I had it. It was only a little on the side of my neck when I turned.

Also, I have not had any more leg buckling for awhile now to add to the above post and I rarely drag my foot … for awhile it happened every day. Also, I was dropping light weight things more in the past and it is much much less often now (never heavy objects) and my voice seemed to feel like it would cut out at the end of words but I don’t have that issue anymore. However, the altered sensation on legs is more and sometimes I am tired climbing stairs but other times it’s normal.

Do you have numbness and twitching and some weakness? How long has it been going on if so?

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