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DiscussionAnyone have input on living with symptoms from cardiomyopathy?
Heart & Blood Health | Last Active: 2 days ago | Replies (58)Comment receiving replies
Replies to "My mistake. I thought I had seen that abbreviation. I will use HCM which makes more..."
@bevjune, there are so many acronyms out there in the world, it's no wonder we all get mixed up! I'm glad you found the Hypertrophic Cardiomyopathy group. You mentioned you were recently diagnosed and then not given any more information. That would be frustrating indeed! HCM is not something that many cardiologists are familiar with. The symptoms seem to fit a lot of different heart issues...and lots of people, myself included, go misdiagnosed or undiagnosed for a long time. In this day and age, it certainly isn't easy to change doctors, but to find a cardiologist who specializes in HCM is really difficult. It is really important to learn as much as you can about your condition and to educate yourself about treatment options, medications, exercise and other life activities. If your doctor is not familiar with HCM, you have to be your own advocate. You will find a lot of information on this site. Take a poke around and read up on others with this same condition. What test or study did you have that your doctor finally decided you had HCM? Do you live near a Center of Excellence (COE)?