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@1775house

I posted a comment to another person who just joined and asked whether or not what I posted was more detailed than what is thought OK and whether there were guidelines. I have gone through so much coping w/ the diagnosis the MDs deciding I needed treatment for depression when I wasn't actually depressed later yes. Today I am trying to find things out about my VNS implant and I went a Mayo Clinic article and I found the group chat and someone was talking about a VNS battery and they had a VNS implant that hadn't worked since it had been put in 21 yrs ago. I was going to say mine stopped the small seizures I was having and maybe a newer with modern technology be different. I definitely would feel the same especially with older technology also there are medical schools that nowadays can give virtual second opinion visits Stanford does that and they have epilepsy specialties the Mayo clinic I'm sure does as well. That was what I was hoping to find any info that others who have VNS might share.

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Replies to "I posted a comment to another person who just joined and asked whether or not what..."

Hello @1775house and welcome!!!

It is good to know you have a VNS implant that it works for you. I have had one for more than 23 years and have not seen any benefit from it. Only the addition of a miraculous drug has made me seizure free. The battery is now dead and a doctor will remove the device. When I can afford the procedure out it will go!