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Shingrix and peripheral neuropathy

Neuropathy | Last Active: Nov 3 12:52pm | Replies (538)

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@matilda1993

Because my original diagnosis was GBS, then CIDP, now it’s SFN (I’m waiting for punch biopsy results), I’m not going near the shingles vaccine.

That said, has anyone here gotten shingles and has it affected your neuropathy?

I’m more scared of the vaccine than shingles, but those who’ve had shingles say it’s the worst thing they’d ever felt. Well, most sufferers haven’t had neuropathy so I’d be interested to see how those with neuropathy have done.

No good choices with stinkin’ nerve pain!

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Replies to "Because my original diagnosis was GBS, then CIDP, now it’s SFN (I’m waiting for punch biopsy..."

I came down with sudden disabling idiopathic neuropathy 7 years ago. 3 yrs ago cancer was discovered and I went through chemo-radiation, and at a weak point came down with Shingles. It was awful awful awful. I won’t say it affected my overall PN though; while my Shingles latched on to my Ulna nerve in one arm, it’s only that area that seems to have lingering effects.
So in 2021, I received the 2 Shingrex Vaccines over a 5 months period with 2 Covid Vaccines fit in properly between as advised by my doctors. All of those vaccines left me with sore arms, but none of them worsened (or improved) the Neuropathy I already had going into it. The pain of the vaccine was absolutely nothing compared to the Shingles I had!
My regret is not having the Shingles Vaccine when I was eligible. I asked for it when I turned 50 since my brother got it terribly when he was 49, but I was told it I needed to be 60 years old since the vaccine was then Zostavax. When I was 53, the Shingrex vaccine came out which recommended age 50 to get, but I “never got the memo” so was still waiting until I reached 60 (I got Shingles when I was 55)
All of us respond differently and have different health issues, but for me, I had no additional neuropathy affects from the Shingrex vaccine and wish I had gotten it earlier.

Same here. Within a week of my 2nd Shingrix vaccine I started having neuropathy in my feet and legs. I wish I could have been given a list of the most severe side effects, before sitting down for the shot. Someone at the FDA said that that information is inside the box that the Shingrix vile came in. So, how were we to read it? They are willfully withholding this information. All the pharmacist said was that I would have a sore arms for a few days. Not. If I had been able to see the worst case side effects I could have made an educated decision. I would gladly have shingles instead of lifetime neuropathy.