← Return to Just diagnosed with invasive lobular carcinoma (ILC): Any advice?

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@lhwoz

Just popping back on to this amazing site and thought I'd response. I am 55yo, I was diagnosed with Stage 1 ILC. Had x2 lumpectomies /sentinal node removal in Jan/Feb (1st time the margins were not clear), followed by radiation and now on Anastrozole for many years. I was Node negative technically although they found "isolated tumor cell) in one node. No chemo as my Oncoscore was below 25. I am 2 months into Anastrozole, healed mostly from surgeries and radiation (minus scar tissue, possible seroma which seems to be getting smaller). Feeling like myself, staying very active with hiking and weighs and stretching....and now I hope and pray for no return of this cancer. Wishing you all the best-this site is a gem.

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Replies to "Just popping back on to this amazing site and thought I'd response. I am 55yo, I..."

Yes! This site is amazing! We are nearly identical, but I am 64 and only needed one surgery(Feb 8, 2023). On Anastrozole nearly one month. Doing LIVESTRONG exercise program at YMCA - free to cancer "patients" past or present. Lots of great exercise keeping me active and happy!

Hi @lhhwoz - my ILC very similar - at 57 yrs old and finished radiation end of January and now on Letrozole. I feel there is no std protocol for follow up scans. My oncologist at Dana Farber feels any scans (even while I have very dense breasts) are not helpful in a year! So I have a diagnostic mammo scheduled not until a year (Oct - regular mammo month). May I ask what your timeline looks like in terms of follow up? Thanks so much!! xo