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@rrlbees

I am new to the group. Thanks for listening.

Some quick background. I was diagnosed with Neuroendocrine cancer 6 years ago. Primary was my duodenum with numerous mets on my liver. Went through chemo, sandostatin, Y90 and now lentreotide the past couple years. Everything over the 6 years has remained stable and some tumors have even shrunk.

Had my regular scans this week and once again existing tumors were all stable. BUT, it was found that there were two suspicious spots on my spine and was said to be a sclerotic C7 lesion and sclerotic lesion in the T9 vertebral body. They said it most likely represents metastatic disease but not definitely. My oncologist wants to do biopsies and then if positive hit them with some radiation.

Anyone have any experience with spine mets?

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Replies to "I am new to the group. Thanks for listening. Some quick background. I was diagnosed with..."

They suspect my brother may have some but haven't done anything for them yet, as I think the bigger concern right now is the liver tumors.

Hello @rrlbees and welcome to the NETs support group on Mayo Clinic Connect. As you can see, I've moved your post to an existing NETs discussion on spine NETs. Here you will meet others like @andy2020 @davidclark @firepowr. I would like to invite them to join you in discussing their NETs journey.

You mention, @rrlbees, that these spine lesions were found by scans. I'm wondering if you were having symptoms as well, or if this was an incidental finding during the scan?