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@kitty2

Here is a article I found..How to Navigate ongoing grief with a Chronic condition..From Living well January 02, 2023..website https://www.bezzyibd.com/discover/living-well-ra/health-how-to-navigate-ongoing-grief/?. I have had long covid since December 2021. and I am right there with you. Some of the doctors say there is nothing I can do for you, hopefully with time these problems will go away, but it is hard when you have to deal with this stuff on a daily basis. Some of the doctors want you to take more medication , when the side effects are worse than the problem itself and make you sicker, like the steriods they give you. We have to keep going and maybe some day they will find something that will help all of us. Sincerely..kitty2

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Replies to "Here is a article I found..How to Navigate ongoing grief with a Chronic condition..From Living well..."

Hello, I'm sorry that you were going through this. I have written many comments on this blog in the past, I'm not sure if there is a way to go back and read them. I have been dealing with long covid for a year this past April. I have been hospitalized six times. Bizarre symptoms from a to z primarily heart issues, feeling like I was going to pass out etc. I started doing a lot of online research in the UK, Israel, and of coarse the well trusted Mayo. Six months ago after a lot of research, I decided to start taking probiotics, also mango leaves (I bought them on amazon in a tea bag form) because of many things I had read stated, to fight any auto immune disease you have to start with your gut immunity. At the time I could not think of being on a tennis court, could not make plans to do any activity as I had no idea how I would be feeling. I am making a very long story short, there were many things I could no longer do, including just taking a walk. I am very athletic and that is a big part of my life. I decided to give it a try. After taking probiotics and mango leaves (tea form) I started feeling better. I stayed feeling well for 5 months, back on the court, traveling etc. A month ago I felt off again, rapid heart beat, exhausted, the nightmare all over again! Sure enough, ended back in ER. Because I had been so busy, I forgot about the probiotics (Florastor) and the mango tea leaves, subconsciously I believe I thought I was better and did not think about either. Right away when I started thinking about what I did or did not do that had changed I remembered I was not taking either. I started faithfully drinking 3 cups a day of the tea, and 2 probiotics daily. I am feeling so much better, not sluggish, on the court again, feeling like myself, (my old self before long covid) NO I do not work for either company, I happen to be retired. I'm not trying to give anybody false hope. But if this can help just one person I would be so happy as I know what it is like to suffer with this. It changes your complete life. I made up my mind 6 months ago that this was not going to owe me and I wasn't going to accept it. Yes I know it's easy to say but I had to transform my mind into knowing that I was going to fight this. I didn't talk about it everyday, as I stopped talking about it and started fighting it. I hope this helps anybody! Take care of yourselves, fight this anyway that you can!