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Undiagnosed and frustrated: RA? Lupus?
Autoimmune Diseases | Last Active: Feb 11, 2021 | Replies (19)Comment receiving replies
@destinnana It must be so difficult knowing something is wrong but that you have to wait until March to see a doctor. Have you thought of going to a medical center or university medical center. That’s what I had to do. No one in my town could figure out what the symptoms meant. And the MRI of my brain puzzled all the doctors. My husband then called the University Med Center and explained all the symptoms. I was admitted in terrible shape but my husband was allowed to take me to the university hospital. We met with a neurologist and I’ve been under treatment since (and the local doctors have learned a lot!)
Many autoimmune diseases have only been diagnosed, or treatments found, in the last 10+ years so they are very new to doctors. Going to see a rheumatologist is a good first physician to see as autoimmune diseases come under their specialty.
Can you try a medical center near you? And, let us know what you learn.
Replies to "@destinnana It must be so difficult knowing something is wrong but that you have to wait..."
I have tried to get in locally or nearby to find there are waiting list and first available appt is in March. Going to Mayo Clinic in Jax in February. Have asked to schedule visit with a Rhuematologist there.
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Sue, I have several autoimmune diseases that were all difficult to diagnose and treat. And, the little buggers like to play havoc with so many areas of our bodiy and lead to other issues. In my case, I find it truly takes a team of experts to link it all together and get me on the best track forward. I highly recommend a teaching hospital, large research/teaching clinic like Mayo or Cleveland or whatever is available re distance. It's well worth the extra effort. Blessings in your research and journey. I am seeing my neurology opthomologist in several days. I have Sjogren's I believe. Have had extreme dry eye problems, interfereing with my sight and getting much worse lately, treated only with refresh over the counter and now Xiidra drops for antiinflammatory issues. They burn so badly now I can't use them. I just realized Plaquenil is used for several autoimmune problems. I'm hoping this doc will have a discussion with me about the possibility Plaquenel will be of some help with joints pain, eyes, other issues I've dealt with for so many years. I'm ready to give it and anything else a try. I'm losing my ability to see! And, of course, I'm in pain all the time.....blessings to you all and the best in 2021! Elizabeth