← Return to Undiagnosed and frustrated: RA? Lupus?
DiscussionUndiagnosed and frustrated: RA? Lupus?
Autoimmune Diseases | Last Active: Feb 11, 2021 | Replies (19)Comment receiving replies
Replies to "@destinnana It must be so difficult knowing something is wrong but that you have to wait..."
I have tried to get in locally or nearby to find there are waiting list and first available appt is in March. Going to Mayo Clinic in Jax in February. Have asked to schedule visit with a Rhuematologist there.
Sue, I have several autoimmune diseases that were all difficult to diagnose and treat. And, the little buggers like to play havoc with so many areas of our bodiy and lead to other issues. In my case, I find it truly takes a team of experts to link it all together and get me on the best track forward. I highly recommend a teaching hospital, large research/teaching clinic like Mayo or Cleveland or whatever is available re distance. It's well worth the extra effort. Blessings in your research and journey. I am seeing my neurology opthomologist in several days. I have Sjogren's I believe. Have had extreme dry eye problems, interfereing with my sight and getting much worse lately, treated only with refresh over the counter and now Xiidra drops for antiinflammatory issues. They burn so badly now I can't use them. I just realized Plaquenil is used for several autoimmune problems. I'm hoping this doc will have a discussion with me about the possibility Plaquenel will be of some help with joints pain, eyes, other issues I've dealt with for so many years. I'm ready to give it and anything else a try. I'm losing my ability to see! And, of course, I'm in pain all the time.....blessings to you all and the best in 2021! Elizabeth