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Undiagnosed and frustrated: RA? Lupus?
Autoimmune Diseases | Last Active: Feb 11, 2021 | Replies (19)Comment receiving replies
Has anyone noticed any side effects from Plaquenil? It’s been offered to me but after reading side effects I’m scare to take but it would seem has been helpful for many. I am going through the gambit of trying to figure things out and having little luck getting an appt with a Rhuematologist locally. First appt available is in March. I too have patches on my elbows, had rash on face across my nose, joints achy, diagnosed burning mouth syndrome and central sensitization (diagnosed at Mayo). I have constant sore throat and at times mouth sores. Have had candida in my mouth at times and on my lip. Positive ANA.
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@destinnana It must be so difficult knowing something is wrong but that you have to wait until March to see a doctor. Have you thought of going to a medical center or university medical center. That’s what I had to do. No one in my town could figure out what the symptoms meant. And the MRI of my brain puzzled all the doctors. My husband then called the University Med Center and explained all the symptoms. I was admitted in terrible shape but my husband was allowed to take me to the university hospital. We met with a neurologist and I’ve been under treatment since (and the local doctors have learned a lot!)
Many autoimmune diseases have only been diagnosed, or treatments found, in the last 10+ years so they are very new to doctors. Going to see a rheumatologist is a good first physician to see as autoimmune diseases come under their specialty.
Can you try a medical center near you? And, let us know what you learn.