1. < Neuropathy

Does anyone have Autonomic Storms

Posted by frattmaa @frattmaa, Jun 5, 2023

Does anyone have Neurological storms/crisis?
Out of all the symptoms I have with autonomic storm is when the neuropathy goes into a extreme fight or flight. You sweat profusely, you cannot control your pain, projectile vomiting, you feel so sick you pray to die. I was getting them 1 every month to 3 months. Now I’ve had 8 in 10 days. They feel so horrible you pray to die. It’s like dying without being able to complete the job. They last from 4-48 hours with treatment. Treatment includes piggy back IVs ( NACL) to replenish lost fluids, morphine and Valium until they stop. They are like seizures while being awake. It horrible.
Am I the only one who has these?

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frattmaa | @frattmaa | Jun 10, 2023
In reply to @tony24 "Something I'm trying to do more when I find myself in a negative state of mind..." + (show)
@tony24

Something I'm trying to do more when I find myself in a negative state of mind because where my life is and my current health symptoms is try to have acceptance for now. When the anger, anxiety and despair shows up I try to feel love. And then send love to the uncomfortable feelings in my body. I want to be more happy and accepting of my situation and reading your story helps me by knowing there is someone who is really going through some stuff and is still hanging in there and is accepting and still enjoying every moment the best you can. Thanks for being strong and an inspiration. You've got huskies I'm jealous. I hope to have a dog and a cat in the future. Please feel free to message me just to have someone to talk to through text if you want. And we can share our fun experience together. Lol.

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It feels like comfort knowing you’re not alone. Somebody knows what I’m dealing with. Not that we wish anything bad to anyone. It’s nice to connect.
A friend of min asked me if 99% of people in the entire world do not like you, how would you feel? I said pretty sad and depressed. He said why? You still have 1% who like you. He said those would be the ones who would stay by your side throughout this horrible journey and I said but 99% hate me. He said but understand that 1% equates to 75 million people. That’s a lot of friends!!! He said keep your illness in perspective do not overload the blessings you do have. So I’m trying for at least 1%. If I can only vacuum for 1% at least I accomplish something. But when you go to do the 1% I also end up doing 100%. He’s a smart friend.

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