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Does anyone have Autonomic Storms

Neuropathy | Last Active: Jun 10, 2023 | Replies (11)

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@frattmaa

You sound just like me with autonomic neuropathy. The treatment varies from small fiber sensory. I know cause I have both.

I am happy my health is quickly declining. Once you die it just like sleeping. I’m not going to know I’m sleeping just like at night. I’ve been dealing with such debilitating pain, I want this to end. It’s been about l. Mine started in 2005. It’s just been too long. I know I’m dying and I’ve went through all the grief stages. So now I’m trying to enjoy the time I have (that’s if I can feel good enough to get out of bed). I have my 4 Husky’s that I love and they have really kept me going) by helping me have fun or relaxing. I’m ADHD so focusing has always been an issue!lol

Last night every few seconds my heart went from 125-68, 109-74-100-70-109-120-64. It did this for hours. I called hospice and basically they can’t do anything. So I took a ml of morphine and the 10mg of Valium and I had already taken my norco and it was 2 hours after. But the morphine and Valium worked. One day I know this will happen and it won’t stop and that will be that.

I try to talk to my boys every dad so that they will have there fond feelings after I’m gone.

I’ll keep trying to be positive! Thank you

-Mark

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Replies to "You sound just like me with autonomic neuropathy. The treatment varies from small fiber sensory. I..."

Something I'm trying to do more when I find myself in a negative state of mind because where my life is and my current health symptoms is try to have acceptance for now. When the anger, anxiety and despair shows up I try to feel love. And then send love to the uncomfortable feelings in my body. I want to be more happy and accepting of my situation and reading your story helps me by knowing there is someone who is really going through some stuff and is still hanging in there and is accepting and still enjoying every moment the best you can. Thanks for being strong and an inspiration. You've got huskies I'm jealous. I hope to have a dog and a cat in the future. Please feel free to message me just to have someone to talk to through text if you want. And we can share our fun experience together. Lol.