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Does anyone have Autonomic Storms

Neuropathy | Last Active: Jun 10, 2023 | Replies (11)
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@tony24

I have some form of full body neuropathy. I believe it was caused by abusing alcohol. Anyway all of my muscles have atrophied and I'm weak and I have have issues with my heart rate and some trouble breathing at times. What you are going through sounds really tough. I believe things will get better for you and you should do your best to remain positive and envision a healthy brighter future for yourself. Have hope that things will get better. Have you tried any holistic treatments like chinese medicine or acupuncture, etc? There's a lot of different types of treatments out there.

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Replies to "I have some form of full body neuropathy. I believe it was caused by abusing alcohol...."
frattmaa | @frattmaa | Jun 10, 2023

You sound just like me with autonomic neuropathy. The treatment varies from small fiber sensory. I know cause I have both.

I am happy my health is quickly declining. Once you die it just like sleeping. I’m not going to know I’m sleeping just like at night. I’ve been dealing with such debilitating pain, I want this to end. It’s been about l. Mine started in 2005. It’s just been too long. I know I’m dying and I’ve went through all the grief stages. So now I’m trying to enjoy the time I have (that’s if I can feel good enough to get out of bed). I have my 4 Husky’s that I love and they have really kept me going) by helping me have fun or relaxing. I’m ADHD so focusing has always been an issue!lol

Last night every few seconds my heart went from 125-68, 109-74-100-70-109-120-64. It did this for hours. I called hospice and basically they can’t do anything. So I took a ml of morphine and the 10mg of Valium and I had already taken my norco and it was 2 hours after. But the morphine and Valium worked. One day I know this will happen and it won’t stop and that will be that.

I try to talk to my boys every dad so that they will have there fond feelings after I’m gone.

I’ll keep trying to be positive! Thank you

-Mark

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