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DiscussionLiving with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Replies to "Hello….my first time and I feel like I don’t have enough information on having seizures or..."
Hi Senoj18, I totally agree with Santosha about looking to the Mayo Clinic on line for information I trust them more than any other site as my first line of information. I just connected too. I think some of the worst things about not knowing about if something that is happening is medical ( for me it was staring ahead and not responding) or something else which others took to mean I was somehow not doing thins right. Eventually I got my kids and friends if I didn't respond quickly to things to ask me if I had taken my medicine most times I hadn't = Asking you friends to tell you when things seem a little off may help. Now I am jumping to a conclusion that since you didn't know you had it you had generalized, petit mal, myoclonic or whatever your neurologist calls it just not the grand mal. Since I am new to this group please tell me if this is more info than I should give or if there are any guidelines that a good to follow. Sanoj18 I sure hope you are doing OK it is not easy to cope with a life altering illness I am sure with over 400 in this group there is a lot of insight.
Hi @senoj18 Good Morning
A warm welcome to this group.
Reading and learning about epilepsy could be very helpful at this stage. At least it has helped me much when I got diagnosed in 2019. I could understand certain reactions I have had in the past (I have lived with epilepsy without knowing it for 30 years). The Mayo Clinic has several nice materials on epilepsy. Have also a look at the Epilepsy Foundation website.
Have a nice Sunday!
Santosha