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DiscussionWhat were your side effects of proton therapy both during and after?
Prostate Cancer | Last Active: Jul 30, 2023 | Replies (26)Comment receiving replies
Replies to "Thanks for the reply. Was was your PSA pre-treatment? I assume you haven't yet checked post-treatment...."
My PCP was concerned because my psa was fluctuating and he ordered a biopsy. My psa was about 6. I don’t remember how many cores were positive, but one of the first things done was to have one genetically tested and in that process it was determined that my cancer was just over the line on the bad aggressive side. My surgeon said that I wasn’t a candidate for surgery and was referred to an oncologist, who first wanted brachytherapy, but I had issues with that, so that left radiation. I choose the high dose therapy because I didn’t want to go for 30+ treatments. I was given a total of three hormone shots, the first two Firmagon, was a bitch and given another one of a different name. I am done with the shots, thank God. I’m just dealing with and waiting for the side effects to subside and figure I should be back to normal in the fall. My side effects are diarrhea, no erections and dry orgasms. And no I have not gotten another psa, it’s scheduled for August. I can only hope that you have a strong and supportive wife/lady with/for you to help you get thru this, I faced it alone and it sucks. I insisted on the SpaceOar gel and my oncologist was impressed I brought it up before he did. I had no problems with the gel. Be prepared to have to relearn how to go the bathroom, as you’ll see when it starts, it’s not bad but if you feel the urge to go, be on the toilet because at first you’ll have little control. I am finally at the point where I can control what I need to do, mostly. And lay in a stash of anti diarrheals. Also ask for ointments for itching and moisture. The radiation itself wasn’t bad and really didn’t have issues, about midway thru I could feel something happening down there, just a sensation but no pain or bleeding. I wish you all the best, be strong, be a Warrior and ring the Bell proudly and loud. Good luck Sir.