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Anyone beat Gleason 8 without surgery?

Prostate Cancer | Last Active: Jun 11, 2023 | Replies (17)

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@remington

I didn't do any deep research which was a huge mistake on my part! My urologist simply said surgery will most likely result in urinary incontinence 10 years down the road and hormones/radiation will result in bowel issues about the same time. When I mentioned Dr Peter Welch's book and how he advised against hormone treatment she chuckled and reported he made a vested interest as he invented the robotic procedure.
20 months in I feel she is indifferent to my problems. I can live with ED but I wish I didn't have to drop my pants like a 3yo to pull the little guy out! To my notable cognitive decline she simply tells me I'm getting older. I keep gaining weight but I can't get my new knees until I loose weight. I went sailing last night and I couldn't maneuver around the boat. The "B Cuppers" that have appeared are more of a physiological problem than a physiological issue, although as it seems as I'm transitioning into a woman I wonder if a mammogram is in my future! Living with constant fatigue doesn't help and the body/joint pain really slows you down.
Other than some minor urinary issues I really don't think the radiation was a problem, but hormone therapy is. I was totally unprepared and in my case my doctor doesn't seem to be offering any help.

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Replies to "I didn't do any deep research which was a huge mistake on my part! My urologist..."

I appreciate the response, as I think every story told is something that can have a positive impact for everyone else. We are "taking one for the team" as we play out the current world of treatment methods for PCa. Your situation is not ideal to say the least and hopefully you can get off of ADT and find that the cells remain asleep and don't come back to life and achieve durable remission.

I tend to research my current and next steps and beyond I'm less in the know. However, the plan after I get off of ADT and when/if it comes back is to explore a PARP inhibitor such as Olaparib with an Androgen receptor signaling inhibitor such as Enzalutamide. I wonder if that might be something you can explore when/if the ADT rises again.

You did the right thing by making a choice to address the cancer.

It might be worthwhile to explore other health team members.

Keep The Faith