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Anyone beat Gleason 8 without surgery?

Prostate Cancer | Last Active: Jun 11, 2023 | Replies (17)

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@edmond1971

Good input and hope that you are now in long term durable remission! In context to the ADT treatment and side effects, did you experience what you expected to happen, or did things happen that were not expected? I think ADT does indeed impact QOL but how you set expectations before starting the treatment is of equal importance and inquiry.

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Replies to "Good input and hope that you are now in long term durable remission! In context to..."

I didn't do any deep research which was a huge mistake on my part! My urologist simply said surgery will most likely result in urinary incontinence 10 years down the road and hormones/radiation will result in bowel issues about the same time. When I mentioned Dr Peter Welch's book and how he advised against hormone treatment she chuckled and reported he made a vested interest as he invented the robotic procedure.
20 months in I feel she is indifferent to my problems. I can live with ED but I wish I didn't have to drop my pants like a 3yo to pull the little guy out! To my notable cognitive decline she simply tells me I'm getting older. I keep gaining weight but I can't get my new knees until I loose weight. I went sailing last night and I couldn't maneuver around the boat. The "B Cuppers" that have appeared are more of a physiological problem than a physiological issue, although as it seems as I'm transitioning into a woman I wonder if a mammogram is in my future! Living with constant fatigue doesn't help and the body/joint pain really slows you down.
Other than some minor urinary issues I really don't think the radiation was a problem, but hormone therapy is. I was totally unprepared and in my case my doctor doesn't seem to be offering any help.