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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@ckins105

They told me they do not run the genetic testing on the DCIS - yes pre menopausal. DCIS high grade with focal necrosis-they said my lesions were so small that it was even hard to classify as DCIS - I feel like I have been given the gift to catch so very early that I need to take care of it completely before the inevitable. I will be asking for a bilateral as have some benign post biopsy sites in my other breast . Er+ and PgR + . I am awaiting a DCIS ion rt test to see how it my specific path would react to radiation. I am a nurse so I have some knowledge and background but not enough to prepare me for trying to figure out what to do .

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Replies to "They told me they do not run the genetic testing on the DCIS - yes pre..."

@ckins105 there is an Oncotype for DCIS https://precisiononcology.exactsciences.com/patients-and-caregivers/understanding-your-diagnosis/breast-cancer/breast-dcis-score

I would request it if you have time to decide. It takes about two weeks. Although you are not having chemo (so maybe that is why they didn't do it) you can still get risk of recurrence and how much medication would cut that risk.

I had grade 3 but low Oncotype. The Oncotype doesn't always match pathology.