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Diagnosed with DCIS: How do I decide on treatment?

Breast Cancer | Last Active: Mar 20 10:00am | Replies (345)

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@windyshores

@ckins105 did you have an Oncotype DCIS done?

I had grade 3 invasive mixed ductal and lobular, with lymphovascular invasion, but a low Oncotype.

Like you seem to, I preferred mastectomy over radiation (and had the non-cancer breast removed as well). But at stage 0 I am not sure what I would do!

Tamoxifen, according to docs and the Oncotype report, cuts risk approximately by half. I assume you are pre-menopausal? Is your ER+ high?

These are tough decisions and I hope you trust your doc and have support.

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Replies to "@ckins105 did you have an Oncotype DCIS done? I had grade 3 invasive mixed ductal and..."

They told me they do not run the genetic testing on the DCIS - yes pre menopausal. DCIS high grade with focal necrosis-they said my lesions were so small that it was even hard to classify as DCIS - I feel like I have been given the gift to catch so very early that I need to take care of it completely before the inevitable. I will be asking for a bilateral as have some benign post biopsy sites in my other breast . Er+ and PgR + . I am awaiting a DCIS ion rt test to see how it my specific path would react to radiation. I am a nurse so I have some knowledge and background but not enough to prepare me for trying to figure out what to do .