Hang in there. It gets better. Squamous Cell Carcinoma of vulva and labia DX in 1984 (after my 2nd pregnancy) was disregarded due to rarity. 3rd pregnancy had undeniable DX with new Dr Raymond Kaufman (Dean of Baylor Medical Center, Houston, TX) 1987 Partial vulvectomy with lymph node dissections on both sides..I came home in staples and stitches to care for newborn and 2 other small children with no support. I studied and learned on my own..it would take a book to document my journey to healing.
1: skirts and no underwear
2: multiple warm sitz baths with anti-bacterial soaps
3: keep dry with cool hair dryer
4: recline and elevate legs and pelvis as high as possible (legs over back of sofa, or lay on floor and put your feet up on sofa.
5: hot moist compress
6: massage and keep lymphatic fluids moving.
7: gentle stretching to avoid scar tissue adhesions.
8: topical lanocain and pure vitamin E oil for pain and healing
9: turn your bedroom into your office, and recline and sleep every chance you get. I had to work, so between naps, I did laundry, prepared nutritious lunches, and made lists of things I had to do.
10: demand help from family/friends unless they are streefull
11: avoid stress.:no noise, drama, extreme temps or exhaustion..
Happy thoughts, comedy shows, Kenny G
12: change diet to change body chemistry from acidic (sugar) to basic (grains..look it up)
13: iron: lots of oxygen to your brain.
14: Immune therapy, give a portion of your cancer biopsy to a lab that can grow it, kill it, re-inject it into your closest remaining lymph node..and teach your immune system to fight your specific cancer. Root for your immune system to win. Pray for yourself. Ask others to pray that they don’t have to raise your wild, independent children.
15: Interluken-2 injections directly into the lesions.
16: find a brave gynecologist close by who can biopsy at the first burn/itch/electrical feeling in the surgical area. They might see a recurrence, but the margins could be clear at earliest stage.
17: if you have irregular periods, get a hysterectomy so that you have enough blood to carry oxygen for healing and fighting. Take deep breaths to assist all of the above.
There was a theory that my husband was a carrier of a mutant Papilloma/Herpes virus which was causing the recurrence. I divorced him and never had another episode..could have been the stress. Years later I have tested positive for both viruses, and my Drs are shocked because they looked for those early on and all negative.
I was a lab rat, and survived to enjoy the results. Bless you, and good luck!