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Pheochromocytoma: Anyone being treated for an adrenal mass?
Diabetes & Endocrine System | Last Active: Sep 27 2:28pm | Replies (93)Comment receiving replies
I love my patient portal as well. I was reading my ct chest report and I saw I had an adrenal mass- unchanged since 2019(it was 2021). No one ever told me I had an adrenal mass- and to be fair when my scan in 2019 was done I was having major health issues and heart surgery. So I just casually asked my cardiologist about it, and she immediately wanted it checked- she just assumed since it was seen on an earlier scan I knew about it. But when the radiologist in 2019 read the scan they didn’t see or didn’t care to put in the impression- so luckily the radiologist in 2021 did. And if I hadn’t spoke up and asked about it, my docs would have just kept assuming one of my other docs was addressing it. I am seeing an endocrinologist now and am scheduled for a surgical appointment in July. It’s not because I have bad docs things just can get missed, and no one is a better advocate than the patient themselves. I am a nurse- and my husband is a physician- we know the faults in our system and we both love the health care facilities that provide a portal for patients to view their records. Most of the time it only helps the patient and their care.
Take care!!!
Jeane
Replies to "I love my patient portal as well. I was reading my ct chest report and I..."
I have been dealing with multiple physical issue since Mar 2023. I went to my PCP with heart palps & possible HPB and right side pain. My PCP started running tests, and her first with blood and urine for Pheo. I didn't have a clue what that was. The results came back extremely elevated. She referred me to endo...it took for months to be seen. During that time other symptoms developed. Heavy sweating, headaches, nausea, pins & needles, weight loss,
diarhea after eating "anything", dizziness, fatigue, severe pain in right side, abdomen, & kidney area. That pain has now spread to the left side. Pain level not as high as right side. Pain in right side, abd, back is now excruciating with minimal exertion. Sever muscle cramps all over my body. I saw the endo and he said he could not help me. His specialty does not have pain related. Had CT scan allegedly did not show anything.
I am seeing my PCP on Mon, and she is running the Pheo lab work again. I have fasted certain foods, beverages, & medications to see how the results turn out. I have not worked since May 5 due to the pain. Every few days I say, I can't take much more. It is all getting to be too much for me.
Renée
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So it's not extraordinary for something like that to go unnoticed! Wow!