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What were your side effects of proton therapy both during and after?

Prostate Cancer | Last Active: Jul 30, 2023 | Replies (26)
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@jb2buckwater

Gleason 6 diagnosis 9/2022. Mayo Clinic Rochester 5 Proton Beam treatments finished 1/19/2023. PSA has dropped to 2.59 in April 2023.
Side effects were urination slow stream which started after injection of SpaceOAR hydrogel to protect rectum. Likely caused by pressure on prostate and swelling of prostate from all of the prodding, poking and placement of carbon markers. Side effects lasted until May 2023. Having largely disappeared. No ED, no change in libido, small decline in seminal volume upon climax.
Bottom line, minimal side effects.
Best of luck for a successful treatment. Where are treatments scheduled?

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Replies to "Gleason 6 diagnosis 9/2022. Mayo Clinic Rochester 5 Proton Beam treatments finished 1/19/2023. PSA has dropped..."
ozelli | @ozelli | Jun 10, 2023

Thanks for the reply. Was was your PSA pre-treatment?

I am starting on Tuesday next week in Japan (long-term resident). 21 treatments at 67GyE.

Interestingly at this institution, while I was free to get SpaceOAR, they were not recommending it basically saying that the risk/reward equation was not particularly favorable.

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