← Return to Idiopathic Small Fiber Neuropathy - chest pressure/tighteness

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@dbeshears1

I have Axonal Sensory PN; I’ve never been tested for SFN as my Neurologists say you can’t have both, but I sure have a lot of the same symptoms as those diagnosed with SFN on top of those I share with those of us with Axonal Sensory PN. One of my chief complaints when I was suddenly stricken with PN 7 years ago was the feeling of a tight band about 2-3 inches wide that seem to run across the upper ribcage, from beneath one breast to the other. My Neurologist then and the several others I’ve had (including Medical University consultations) all have said they have no idea why and say it’s got nothing to do with Neuropathy. A couple have suggested mentioning it to my GI’s, who do EGDs and abdominal scans & tell me to go take it up with my Neurologist again. Just one more mystery symptom that’s handled like a ping pong ball between specialists.
I think it’s more than coincidence that this tight feeling and discomfort started at the same exact time as my sudden & crippling idiopathic neuropathy, so I guess this tightness is an idiopathic issue too. Like you, it doesn’t affect breathing or oxygen saturation, but its definitely there.

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Replies to "I have Axonal Sensory PN; I’ve never been tested for SFN as my Neurologists say you..."

It just can’t be a coincidence that we have this tightness along with the PN… There must be a connection. I feel like if any of my doctors felt this for even a day, they’d certainly figure it out!!!

I have the exact same symptom as you describe, the pressure band in my chest! and I almost feel I should not mention it anymore to the doctors, because any and all the doctors I mention this, don't understand or relay to it! I wish they will read these blogs! I have come to the conclusion that same as my legs and hands are becoming stiff, my muscles in my torso are also getting stiff. which brings me to question my diagnostic of CIDP????? BTW, my face around my lips is also num.