Connect
← Return to Looking to connect with people who have non-diabetic neuropathy
Discussion
Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
I am also trying to connect with people who are like me.
I have peripheral neuropathy also. Non-diabetic. I have had it for 8 years. In my feet. Was being treated with chronic back pain since 2010. Started with Tramadol now I’m at Norco/Hydrocodone. When neuropathy started it drove me crazy. Pain Dr. started me on Gabapentin. All I wanted to do was sleep. He said that would go away and it has. So I’ve been taking a pain pill and Gabapentin for a long time. I’m 78 soon to be 79. I have to wear socks and shoes during the day. Can’t go barefooted. I also wear bamboo socks and will sometimes at night. Or use Voltaren on my feet before bed.
I think mine is hereditary except my older brother has it in his feet and hands from Vietnam. Agient- Orange.
Sometimes mine really drives me crazy. I take 600 3x day and the new Nurologist’s says I can increase to 900. I’m starting out at night time only.
Is this typical for any of you?
Replies to "I am also trying to connect with people who are like me. I have peripheral neuropathy..."
Very typical for me. I have a hard time understanding why barefoot walking is so difficult for me - I even have to wear (water) shoes in the swimming pool. I started 7 yrs ago on Gabapentin and now take 800mg 3x a day. I don’t get sleepy, don’t need a nap, though my PN forces me to sit a lot. It helps moderate the extreme cold/heat sensitivity I have as well as nerve pain. Wishing you the best in finding the right balance!
Connect
From what I've read it's not uncommon to have to increase the dosage of gabapentin over time. There is another discussion on the topic that might be helpful:
--- Pregabalin & Gabapentin Not Working.: https://connect.mayoclinic.org/discussion/pregabalin-gabapentin-not-working/