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@1pamella

Hi, yes, @lynmal725
I have had many random neuro symptoms that hit hard in the fall of 2020. I've become a patient advocate since this journey started.
The neurologist is not wrong that the cause could be an ENT issue BUT There is a chance there is a genetic component to her symptoms. The 2 things I would recommend doing are to:

1. Ask an ENT to test her Vestibular System with a VHIT & a VNG test and request a hearing test as well. In fact don't ask Tell them what you want. Caloric testing is helpful.

2. If I were you I would also ask either the ENT or a neurologist to run a "Full Comprehensive Ataxia Panel" genetic lab test. There are many new types of ataxia that encompass symptoms like this and more types of ataxia are being discovered as I type this. Not all ataxia types share the same symptoms, I know this firsthand unfortunately. There is an ataxia that has an RFC1 gene mutation with similar symptoms this it is called RFC1-CANVAS Spectrum Disorder.

3. While I don't know your daughters age it is possible she has a parathyroid issue, this can happen at any age and can Also can be genetic (born with it). Genetic testing can help determine this too. Some gene mutations associated are MEN1, MEN2, & more...tell them you want this testing too. I say this because parathyroid issues CAN cause neurological symptoms. Don't let them tell you no, push back & be your own best advocate.

I am not a medical professional just a professional patient advocate that has learned A LOT from my experiences and aim to help others on their quest to find a dx. My best to you.

PS. Vestibular.org has lots of helpful info along with ataxia.org

P.S.S. Just because a brain MRI did not present with any abnormalities does not mean there is nothing going on in the brain. Movement disorders do not always have atrophy of say the cerebellum or the pons.

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Replies to "Hi, yes, @lynmal725 I have had many random neuro symptoms that hit hard in the fall..."

I , along with most others on here, believe you need to get to a different location and find a different doctor. If you need to go to the ER....go to a different one. As an example, I have Myelomalacia, which presents in an MRI, (mine is cervical) it was found by accident on a different MRI and it is a progressive disease, with a host of things it can mess with such as neck pain, back pain, numbness in different limbs, falling down, breathing, etc.....because it is a spine issue and your spine runs your body.
My opinion, is you doctor hop until you find a compassionate one that will listen and get to the bottom of it.