← Return to Idiopathic Small Fiber Neuropathy - chest pressure/tighteness

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@kath1492

I can absolutely relate! I’ve had this terrible torso tightness for 3 years!! My doctors just tell me they have never heard of it. I already take the highest dose allowable of Gabapentin because I basically have neuropathy issues from head to toe. Wish I could just get a new spine! I’m sorry to hear that so many others are suffering, yet it’s reassuring to know that I’m not alone. Thank you. ❤️

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Replies to "I can absolutely relate! I’ve had this terrible torso tightness for 3 years!! My doctors just..."

I have Axonal Sensory PN; I’ve never been tested for SFN as my Neurologists say you can’t have both, but I sure have a lot of the same symptoms as those diagnosed with SFN on top of those I share with those of us with Axonal Sensory PN. One of my chief complaints when I was suddenly stricken with PN 7 years ago was the feeling of a tight band about 2-3 inches wide that seem to run across the upper ribcage, from beneath one breast to the other. My Neurologist then and the several others I’ve had (including Medical University consultations) all have said they have no idea why and say it’s got nothing to do with Neuropathy. A couple have suggested mentioning it to my GI’s, who do EGDs and abdominal scans & tell me to go take it up with my Neurologist again. Just one more mystery symptom that’s handled like a ping pong ball between specialists.
I think it’s more than coincidence that this tight feeling and discomfort started at the same exact time as my sudden & crippling idiopathic neuropathy, so I guess this tightness is an idiopathic issue too. Like you, it doesn’t affect breathing or oxygen saturation, but its definitely there.