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Polyneuropathy

Neuropathy | Last Active: Jul 7 10:27am | Replies (33)

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@kath1492

I feel your frustration! Neuropathy has kind of taken over my body. I have so many symptoms all the time, including extreme torso tightness/spasm 24/7 for 3 years!! The doctors just tell me they’ve never heard of that. They don’t even attempt to help me figure it out. It seems like I basically just need a new spine, haha!! I have been diagnosed with Raynard Sequard Syndrome, I’ve had neck surgery and now apparently one of the cages has slipped and I need lower back surgery. I had massive amounts of chemo and prednisone when I had Burkitt’s Lymphoma 9 years ago, and then I had a neck injury about 4 years ago. The consensus is that all of this is caused from all of that. The numbness, burning pain, intense itching, twitches, spasms, weakness, fatigue…It’s just all too much. I’m so discouraged and I’m so sorry and sympathetic to what you’re going through. I agree, supplements seem worthless! I wish we had some answers. I just do my best to cherish the moments when I don’t feel awful. I’m a 64 year old female btw and this is my first post. Sorry it was so long! Does anyone else have the torso tightness, kind of like you’re wearing a corset made of wood? It’s so awful! Thank you for listening. ❤️

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Replies to "I feel your frustration! Neuropathy has kind of taken over my body. I have so many..."

Welcome @kath1492, I can't imagine how difficult it is to manage so many different conditions and not get any good answers for treatments. I struggle with my neuropathy numbness, balance and a few others but nothing compared to what you are dealing with.

@sf2021, mentioned similar torso tightness and started a discussion here that might be helpful:
--- Idiopathic Small Fiber Neuropathy - chest pressure/tightness: https://connect.mayoclinic.org/discussion/idiopathic-small-fiber-neuropathy-chest-pressuretighteness/.

Have you done any research on alternative or complementary treatments that might help?

My heart goes out to you. Here I was feeling sorry for myself and I have only a fraction of your ailments. You are very brave and I just hope there is a cure around the corner for all of us ..Take care of yourself as best as you can.