Thank you so much for your reply. You are right about the feeding tube. However, he absolutely refused when his doctor recommended it. I cannot seem to reason with him on that subject. He does drink one bottle of Boost+ each day along with vitamins. He eats, but fills up quickly. I try and make sure that he has whatever he wants to eat, whenever he wants to eat. He has had three surgeries so far. We have our fingers crossed that he won't need another. It started with a Melanoma diagnoses. He only had radiation for the first one. That was about three years ago. It seems to reappear every year. I always wondered if someone at Mayo Clinic could help discover what could be done to help him. We discuss his problem a lot, even have two doctors in the extended family. They think that something in his brain has been damaged by the radiation. Again, we thank you.

I had radio iodine treatment after thyroid cancer in 2012. I still suffer side effects of runny eyes, especially after i drink water. Nodes and scar tissue in my neck still remain and now they I have chronic leukemia and a new lupus diagnosis they are worse. I suffered from laryngeal spasms (where your throat spasms and just closes completely) and probably still do just they are getting more infrequent. I have a glass or bottle of water with me at ALL times and panic when I don't have it. And still drink water to help swallow food. My husband had to grind my food for almost a year and we had a hand signal when we went out to eat with people that if I was having a spasm i would make the gesture and he would take the attention off me while I recovered. I did have a partially paralyzed vocal cord nerve after surgery so that might have made it worse. I personally believe the surgeon did not do the surgery and that, since it was a teaching hospital, I think one of his residents did the surgery because that was the "chapter" they were on. I say that only because another woman had the same surgery. Same doctor. Same hospital. Same year and month and was told she had a tumor wrapped around her vocal cord nerves just like I was told but it mysteriously never appeared in my records!!!
By the way. If you have a laryngeal spasm, the way to get rid of it is to breathe through your nose and swallow and it helps break up the lockup. In the midst of major panicking about not breathing through the mouth we forget we still have a nose!! Only ONE top
ENT knew that answer!! One.

Malt powder!!!!! Add malt powder to your magic concoction!!!!!
I'm currently undergoing treatment for cancer round 2. This time of the throat. The radiation has done a number on my mouth & throat: sores, pain, loss of taste. Hopefully insurance approves the juice that goes into my already inserted J tube.