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Successful Depakote weaning

Epilepsy & Seizures | Last Active: Nov 10 6:19am | Replies (43)

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@grammy82

@tlb101175
I'm going to be blunt~I think it is time for a new neurologist.
I've been dealing with epilepsy for 68 (I can't believe it) years now...I've had the best of treatment in Boston, the worst with one neuro in Indiana....who left me with a case of drug-induced lupus. First..I've never heard of a doctor just stopping anticonvulsants...boom...stop, outrageous. Then, when he went off it....you requested the EEG, which showed seizure activity.
I have a friend in England with epilepsy (70) who just got the right mix of meds so no more brain fog...and fewer memory issues.
He is so young, I think it would be great if he could be seen by a 'fresh-view' neuro. Where do you live? I had two grand mal as a teen, one at 31 and one at 34. But during all that time I was a single mom, running a house with 3 jobs sometimes and mentally sharp and aware. It may take some trial and error, as I experienced, but with today's advances in meds...I'd be surprised if they even had him take Depakote anymore.
I'm sure my parents worried, but I didn't. I used to work with The Epilepsy Foundation while in New Hampshire; my desire was to do away with the fear and restrictions some parents imposed on their young ones. I felt like if I fell...I'd get up. I'm proud of your son for wanting to be on his own. He has to have confidence in his ability to cope. Is he wise at 22? I had one son that was and another who just getting there. Your love for him is evident and he's very fortunate.💞

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Thank you so much for your words of wisdom:). I do always tell myself let go let God! We are seeing an epileptologist in December 🤞he is a good kid for sure his mind is just all over the place at times. We live in PA. He is currently doing a plumbing apprenticeship so that’s were all the issues with the medication seem to kick in but he is a hard worker and seems to be doing well:).