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@dgoinvestments

No side effects from radiation except the oral chemo pills. I was nauseous for all my chemo treatments plus the oral ones. Some people told me I might have skin on hands and feet crack or peel and to use a special lotion they recommended and I bought, but I did not have any burning, cracking or peeling. I did have a bit of dry mouth but I sucked on lifesavers or other hard candy or drank water all the time and I was fine. I found radiation easy and played pickleball 2-3 times a week when I was at Mayo in Rochester Good luck to you!

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Replies to "No side effects from radiation except the oral chemo pills. I was nauseous for all my..."

I just had my first round of Folfirinox yesterday (Friday, June 9). What type of hand/foot lotion was recommended? I saw the recommendation for lotion but missed what specific type. Thanks.

@dgoinvestments : May I ask whether chemo + radiation has made you NED, or whether you also needed, or will need, surgery?

I've had six rounds of Folfirinox, will have at least two more, and am waiting for my onc to discuss my case at his dept.'s next weekly conference. It's not yet clear whether my cancer has metastasized (there are nodules on my lungs, but a CT scan three days ago indicate no change in their size, which is good BUT not conclusive); if it has, then my onc. doesn't want me to have surgery.

For now, the options seem to be radiation, radiation followed by surgery, surgery, or more chemo. So far, the chemo seems not to have shrunk my tumor, tho it has lowered my CA19-9, from 387 to 163. So I'm wondering whether radiation + oral chemo can zap the tumor and get one to a state of NED. Thanks for your time and help; wishing you well.