I'm sorry to hear about your health problems. Lots of sympathy headed your way.
I only have a tidbit of experience to share about scleroderma.
I tested positive for the SCL 70 antibody 3 times over the course of maybe 8 years. I have another autoimmune disease, so doctors do blood tests on me pretty frequently. I never had any of the visible skin indicators.
Apparently, there are different blood tests for scleroderma. Eventually, one of the labs sent my blood sample out to another test that showed I don't have scleroderma. My rheumatologist and dermatologist seem pretty confident that I don't have and won't get scleroderma based on that particular test.
Sorry to add another item to your list of considerations, but I hope maybe it will help.