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Neuroendocrine tumor and carcinoid tumor
Neuroendocrine Tumors (NETs) | Last Active: Jun 14, 2023 | Replies (26)Comment receiving replies
Thank u so much for ur kind words. My insurance denied my NET Scan so I'm appealing that to get my scan done. I reside in Charlotte , NC. I had chasing wat was wrong with Me for over 10yrs and finally got the right Dr. to send me to a Gastroenterologist and this is where I'm at today. I've been educating myself on this rare form and that's why I came here. To search for answers, to be in support of and to see which direction to go with this. It's like I was just told this in March 3rd and have been trying to get a NET Scan since then??? I'm wondering if I should search for another Gastroenterologist or is this normal for wait time..??!
Replies to "Thank u so much for ur kind words. My insurance denied my NET Scan so I'm..."
Again, sorry you are going through this at a time when you need answers sooner than later. If you don't have someone to help guide you through the process I would talk to the hospital/clinic ombudsmen & see if they can get some answers for you. If you have any doctor friends or know someone who knows a doctor, I might ask them for suggestions. If it's someone at the place where you're getting treatment that would be great, but oncologists for NET are not a huge group, so hopefully once you get set up, things will go more smoothly. I would then start to email, call, wait there in person to find out what is the hold-up? (Is it the insurance?) Then I would call and email the person or department in charge of patient services & tell them what your experience is & how will they help you. I would not let too many days go by without making some sort of inquiry--the squeaky wheel gets the grease, so now's the time to squeak up a storm! Best of luck, hope this helps some.
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Hello @makebadaniels73,
It is difficult to say why there has been such a delay in having your scan approved by insurance. Have you asked your doctor's office about filing an appeal? Has your insurance company given you a reason to deny this scan?