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Long Covid burning sensation inside their muscles?
Post-COVID Recovery & COVID-19 | Last Active: Mar 9 6:27am | Replies (19)Comment receiving replies
I’ve seen a neurologist who did MRI’s and nerve function tests. Normal except some herniated discs in my neck and lower back that “can’t be the cause for my symptoms maybe you should see a physical therapist”.
I’ve seen cardiologists for heart palpitations but the two types that I have simultaneously (ventricular ectopy and paraventricular ectopy) are inconsistent enough to not need treatment.
I’ve seen endocrinologist for thyroid inflammation but it’s not bad enough to treat, “let’s watch it”.
Gastroenterologist for the severe lower stomach/abdominal pains. Colonoscopy and all bloodwork came back normal, three types of medication haven’t helped. Still have to get a CT done “just to make sure we aren’t missing anything”.
All my labs testing for other autoimmune diseases, I say other because I have psoriasis and psoriatic arthritis, but all other tests come back normal so no other illnesses could be causing my symptoms…
But I never heard anything from others about the muscle burning. I have the post exertion malaise for sure but I had not heard about that until just recently and still no findings for treatment or help.
I do take Tizanidine for leg/foot cramps I get…. Works wonders for that but not the burning or muscle twitching I get.
Replies to "I’ve seen a neurologist who did MRI’s and nerve function tests. Normal except some herniated discs..."
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Well let's hope all the money pumped into the research starts to find out why the body if fighting itself in covid. It mainly is an autoimmune condition I believe as I have never had any issues with muscles, muscle burning, brain fog, etc. My first covid experience was not great, but the 2nd one seemed to turn some muscle issues on some how, yet my CRP, CK levels look ok. The muscles burn for no reason, and has now kept me off of any exercise basically. It is insane that the docs maybe cannot associate this covid with other type of mast cell activation syndrome stuff, etc. It is the body just turning on the immune system. My rheumatologist wants me to try hydroxychloriquin, but not sure if you or anyone else has tried similar stuff for the muscle pains. I also have read some posts about low dose naltrexone, etc. Maybe some other medications might help as well but i do not want to be a guinea pig as need to get to root cause of the immune system disregulation. I was going to look at the Dr. Bruce Patterson long hauler blood tests, etc. to see, and than they have a protocol to try.
If you find any other posts or medications that could help with muscle pain issues, etc. let me know. Keep trying to fight on. I am not even sure what diet to follow any more as I already ate health.
Best of luck with everything, and hope we can find some definitive answers for those of us that have pretty normal blood work, yet all these symptoms.