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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)
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@ameliae

I am trying to find support having been recently diagnosed with Paget's Disease of the vulva. Upcoming surgery. Can't find anyone who has had it, who understands, and who can help. Seeing the above - unable to sit, drive, walk for a month! Is that typical?

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Replies to "I am trying to find support having been recently diagnosed with Paget's Disease of the vulva...."
sonyac518 | @sonyac518 | Sep 24 3:27pm

I am 2 1/2 weeks out of surgery. It is typical for 3 or 4 weeks of healing. Mainly I find having any clothing on the area is irritating so I'm home only getting dressed if absolutely necessary for appointments. Make sure you have a sitz bath. Nobody told me to do that after surgery and it caused problems. I don't know how anyone could do this 6 times once was enough for me

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