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Do you know about the NTM Talk Podcast series?
MAC & Bronchiectasis | Last Active: Jun 9, 2023 | Replies (14)Comment receiving replies
I was recently diagnosed with pseudomonas. Probably had it for several years, but was not able to produce sputum until 6 months ago. I had a one month course of Tobramycin with two weeks of Cipro. Had a remarkable reaction. Was two months free of any symptoms, felt better than I have had for years, and able to walk 6 miles a day. Then symptoms returned. Now am repeating treatment and feeling better. I have had no side effects from Tobramycin, except from hoarseness the first time. I know pseudomonas is difficult or impossible to eradicate . How is colonization and Mucoid strain diagnosed? Has anyone been on continuous Tobramycin?
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Mucoid is seen in the sputum samples. Toby is often used ongoing for those with Pseudomonas. Usually two weeks on, two weeks off or one month on, one month off. It is important to take the break and not use it continuously. I tried it but had to stop after only 5 treatments!