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Share Your Brain Tumor type & Years since Diagnosis
Brain Tumor | Last Active: Oct 1 3:11pm | Replies (36)Comment receiving replies
We found a brain tumor in 2015 when I volunteered to be a baseline (none injured brain) for a TBI study. We monitored it for 7 seven with no noticeable change then in 2022 it was growing. It was biopsies in July 2022 and identified as Oligodendroglioma Mutant type II. Because of the location involved the dominant hand and foot area we decided not to remove any move after the biopsy. Started 30 rounds of radiation in October 2022, and then six rounds of chemo starting right after Christmas. Follow up MRIs have shown shrinkage, but still currently there expect to see more shrinkage over the next year. Outside of finding the tumor by accident in 2015 and monitoring it for growth I had no other symptoms of having a tumor.
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My name is Dale A Dejnowski my MAYO connect name terridalecasino. I had a brain tumor when I was 11 years old. The Tumor type was a primary,pituitary, benign, astrocytoma, grade I in other words it was a slow growing tumor. According to the neurosurgeon, he told my mother it was about the size of a large size lemon. According to my nedical records [which I have from 1970] it was taken out in piecemeal.
However, I will say I did have symtoms that something was wrong? I just didn't know what? For about a year and half prior to my diagnoses I was experiencing severe headaches. having no idea something was growing inside my head? Especially at such a young age, age (11) years old. The only way we,[my mother, father, and I descovered it was when on the way to a newly built shopping mall I started to go into severe convultions in the car on the way there! After arriving at the E-Room and performing an ANGIOGRAM that's when they discovered this BIG O MASS in the right TEMPORAL, PERIETTAL, OCCIPITAL LOBES!. I also had a PNEUMOENCEPHALOGRAM, VENTRICULOGRAM AND A CRAINIOTOMY!
I truely feel it was because of my very young age (11) that I SURVIVED as well as I did? That and a whole lot of PRAYING. At age 65 now, I am doing so-so I still have TBI symptoms ie. lack of concentration,memory, and attentiveness. Which is why I study and research "NEUROPLASTICITY" MY DEFINITION "IS " THE BRAINS ABILITY TO ADAPT OR CHANGE IN RESPONCE TO WHAT I CALL E.E.I.T. [ENVIRONMENT, EXPERIENCE, INJURY, AND TRAUMA!
In closing all I have to say IS LIVE LIFE TO THE FULLEST YOU CAN AND DON'T BE AFRAID TO LIVE YOUR LIFE AS H.O.P.E. [HELPING: OTHER: PEOPLE: EVERYWHERE! GOD BLESS!!!!