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Does anyone have Autonomic Storms

Neuropathy | Last Active: Jun 10, 2023 | Replies (11)

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@margaret10

It's good you don't have Addison's. It sounds like the the responsible genetic mutation(s) is/are already clear. I hope your doctors are able to identify some sort of gene therapy or protein replacement therapy that could correct or replace your mutant SDHB (and any other mutant genes) so you can get some relief. FYI, my mutant SDHB is hereditary and, together with another mutant gene FBXL4, is responsible for my peripheral neuropathy and Addison's (and possibly my seizures). But every case is different, and treatment seems to require a custom-made approach. Praying for a good outcome for you.

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Replies to "It's good you don't have Addison's. It sounds like the the responsible genetic mutation(s) is/are already..."

I’m so sorry to hear you have Addison. I pretty much don’t know hardly anyone that is healthy anymore. In USA we have thousands of genetically engineered plants and animals. Our bodies do not recognize this food and it’s poisoning so many people. I believe this is why we have so many prevalent diseases. Canada
Only permitted 4 things to be genetically modified. 3 are oils ( Canola, Safflower…) the only other one is corn.
I hope you get some good days where you can enjoy some of your life.
-Mark